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» Overcoming adversity
Goodbye arsehole.
I have had crohn's disease for nigh on 7 years now and admittedly it hasn't killed me, but it fucked my life up that much that it might has well have done.
When your 19/20 and your going to drop the kids off at the pool at least 60+ times a day (no joke) and with less than a minutes warning (if lucky), life becomes a little difficult. You cant leave the house for fear of dropping bombs when not over a valid target.
I started to get treated and flew through conventional treatments like steroids and was put onto immunosuppressants which again failed to work. I then was put onto "biologics" which are like hardcore immunosuppressants you have by a drip or self injection. No they did work however I then developed a narrowing of my intestine and the only way to deal with that is surgery.
3 months and 18 days ago, I had a proctocolectomy. For those of you who dont know what it is, some very nice people at the Royal London Hospital surgically removed about a foot and a half of large intestine and my arsehole, yes I am officially a proper barbie/ken bum.
I've been left with a permanent colostomy which to get at 24 years old is a bit of a head fuck but it changed my life overnight. I've gone from not being able to leave the house and get on public transport or go anywhere really to being back to normal and being able to do what I want, when I want. It's fucking amazing, I almost wish I had done it sooner. Shitting in a bag for the rest of my life is a small price to pay in my eyes to get my life back.
Better a bag than a box!
apologies for the lack of funnnys
It was about a foot and a half once out.
(I'm only putting this link up for people that are interested, its not about hits it's there to try and help people understand. lifeisballbagthenyoudie.wordpress.com/ )
(Tue 18th Dec 2012, 2:20, More)
Goodbye arsehole.
I have had crohn's disease for nigh on 7 years now and admittedly it hasn't killed me, but it fucked my life up that much that it might has well have done.
When your 19/20 and your going to drop the kids off at the pool at least 60+ times a day (no joke) and with less than a minutes warning (if lucky), life becomes a little difficult. You cant leave the house for fear of dropping bombs when not over a valid target.
I started to get treated and flew through conventional treatments like steroids and was put onto immunosuppressants which again failed to work. I then was put onto "biologics" which are like hardcore immunosuppressants you have by a drip or self injection. No they did work however I then developed a narrowing of my intestine and the only way to deal with that is surgery.
3 months and 18 days ago, I had a proctocolectomy. For those of you who dont know what it is, some very nice people at the Royal London Hospital surgically removed about a foot and a half of large intestine and my arsehole, yes I am officially a proper barbie/ken bum.
I've been left with a permanent colostomy which to get at 24 years old is a bit of a head fuck but it changed my life overnight. I've gone from not being able to leave the house and get on public transport or go anywhere really to being back to normal and being able to do what I want, when I want. It's fucking amazing, I almost wish I had done it sooner. Shitting in a bag for the rest of my life is a small price to pay in my eyes to get my life back.
Better a bag than a box!
apologies for the lack of funnnys
It was about a foot and a half once out.
(I'm only putting this link up for people that are interested, its not about hits it's there to try and help people understand. lifeisballbagthenyoudie.wordpress.com/ )
(Tue 18th Dec 2012, 2:20, More)
» Drugs
MMM Legal drugs
(Slightly of topic but ho hum)
Well having the pain in the arse disease that is crohn's I am lucky enough to sample the best that the NHS and occasionally BUPA has to offer, of many legal and often mind bending drugs, usually whilst having cameras forced into my, now all to often abused brown bat cave.
Whilst becoming my own discovery channel special a number of highly embarassing moments ensued, well more embarrasing than being lubed up and having a good 4 foot of endoscope inside me whilst i was being inflated like a lilo.
I decided, as you do, to make small talk with my long suffering doctor whilst he abused my insides. Whilst watching the screen with my insides being shown on (thank god it wasnt HD) we arrive at what appears to be a brown lump and before i can say anything my doctor chips in "Oooh and theres a bit of poo" in a massively patronising voice. Excellent now my doctor and 2 unfortunatly quite hot nurses had seen my poo INSIDE ME.
Not to worry the camera was expertly manouvered around the offending log and the journey into my insides was continued. So now for more small talk.
"Its not uncomfortable is it?"
"No actually its not too bad, I mean hell some people do this for fun dont they."
At which point one nurse stifles a giggle, and the doctor fixes me with a very serious stare and says "We are definatly not doing this for fun though are we!?"
Heavier and less embarrasing sedation next time please.
lenght? oooh a good few feet
(Sun 19th Sep 2010, 21:59, More)
MMM Legal drugs
(Slightly of topic but ho hum)
Well having the pain in the arse disease that is crohn's I am lucky enough to sample the best that the NHS and occasionally BUPA has to offer, of many legal and often mind bending drugs, usually whilst having cameras forced into my, now all to often abused brown bat cave.
Whilst becoming my own discovery channel special a number of highly embarassing moments ensued, well more embarrasing than being lubed up and having a good 4 foot of endoscope inside me whilst i was being inflated like a lilo.
I decided, as you do, to make small talk with my long suffering doctor whilst he abused my insides. Whilst watching the screen with my insides being shown on (thank god it wasnt HD) we arrive at what appears to be a brown lump and before i can say anything my doctor chips in "Oooh and theres a bit of poo" in a massively patronising voice. Excellent now my doctor and 2 unfortunatly quite hot nurses had seen my poo INSIDE ME.
Not to worry the camera was expertly manouvered around the offending log and the journey into my insides was continued. So now for more small talk.
"Its not uncomfortable is it?"
"No actually its not too bad, I mean hell some people do this for fun dont they."
At which point one nurse stifles a giggle, and the doctor fixes me with a very serious stare and says "We are definatly not doing this for fun though are we!?"
Heavier and less embarrasing sedation next time please.
lenght? oooh a good few feet
(Sun 19th Sep 2010, 21:59, More)