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# the woman who had the cluster headaches for 3 years
I've had them now for getting on to 5-6 years on and off (on a good stretch at the mo with very few).
Hers was a chronic condition with 8 'attacks' during the day, although it's there permanently for those who gets them (wake up - bedtime)
she had same pain, same area of head, and I couldn't have described my own pain/condition to it any different. As I'm on
a good stretch at the mo I won't be going down that route, but if I have another bad run, I'd definitely consider
the electrodes yes :-)
The guys at the hospital when I last went just reckoned there was 'nowt that could be done to seriosuly help it'
It was nice to see something that possibly could
(, Thu 23 Nov 2006, 11:58, archived)
# cluster headaches?
/cant be arsed to open another tab to google, and b3ta is source of all knowledge anyway, blog
(, Thu 23 Nov 2006, 12:01, archived)
# its a series of painful - rather than aching 'attacks' that occurs in the head,
usually localised around one point (in my case the right hand side, adjacent to the eye).
The pain tends to be underlying all the time, from waking up through until sleeping.
In my case, the pain tends to last in 3-4 months bursts at a time, and you have to get used to it,
but you do get a lot of 'sharper attacks' during the
day. I've had the whole gamut of drugs/scans and the like, and was told earlier this year
that there wasn't a lot that could be done.
Thankfully now, I'm 4 months in to a 'good' period
(, Thu 23 Nov 2006, 12:04, archived)
# it's weard as the brain itself can atuallt feel no pain, it all the stuff around it
i remember watching one on brain cancer and a cuy was haveing a big tumopr cut out his head but they needed him awake so that they didn't go too deep, the doc on that said that the brain doesn't feel pain itself.

(, Thu 23 Nov 2006, 12:02, archived)
# my pain isn't 'in or on' the brain, rather to the side of it,
next to my right eye, but i'd be interested in these electrodes as a long term solution,
I'd even get my own remote control
(, Thu 23 Nov 2006, 12:05, archived)