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Something called "NICE" (a part of the NHS) are working on 2002 data for my medicine, and as such, are pondering about proper funding.
It's shit, because of this first wait, I've had to start from scratch with my treatments. They've authorized the 'initial' treatments, that I'm going through, but by the time they make the permanently decision, I'll have to go through the 'initial' stuff again, because it wears out.

And because I'll be going through the initial stuff, they won't make the decision.

It'll loop around forever and forever, unless they so 'no', in which case, they'll be appeals and stuff, and continuation of the loop.

So, basicly, I get to be well for two months, then sick for 6 months, for a long time, because they're working on data from 2002 which doesn't show how well this stuff works.
(, Wed 27 Aug 2008, 12:43, archived)
Thats shit
Can't you fund it yourself until they make a decision?
It would get you out of the "loop"
(, Wed 27 Aug 2008, 13:18, archived)