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This is a question Doctors, Nurses, Dentists and Hospitals

Tingtwatter asks: Ever been on the receiving end of some quality health care? Tell us about it

(, Thu 11 Mar 2010, 11:49)
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Starting my life again
Right.

As some of you will be aware, I suffered a massive brain haemorrhage (a rare type of stroke that kills 60% of sufferers) at the tender age of 14. It was the 28th July 1995, but it still feels like it was only last week.

I was a spotty, greasy fourteen year old, and had just finished year 10 at high school, a year before I took my dreaded GCSEs. I had been out on a bike ride with two friends in the morning, and had arranged to go swimming in the afternoon, which (luckily!), was canceled at the last minute.

I spent the afternoon alone playing on my MegaCD when, without any warning, I suddenly felt dizzy and very sick. I tried to stand up, but I completely lost my balance and fell backwards onto my bed. My vision had just become an erratic kaleidoscope of colours, unable focus on anything. My head pounded with an indescribable pain. I was able to get to my feet and stagger towards the bedroom door, and start making my way downstairs to the kitchen (I don't really know why I tried to do this, but the medicine cabinet was in there so I think it was an automatic response) I managed to get half way before my legs completely buckled and I fell the rest of the way, hitting my head and shoulders on the radiator in the hallway, but I didn't feel a thing. I managed to reach the kitchen on my hands and knees, and haul myself onto the bench where I just sat with my head in my hands, trying to comprehend what was happening. I fell off the bench a few seconds later as my balance completely deserted me and just lay crumpled on the floor, waiting to be found. I was drifting in and out of consciousness at this point; the last thing I remember was Dad frantically calling someone on the telephone before I lost passed out completely.

The time it took from me being an average 14 year old playing videogames in his room to losing consciousness on the kitchen floor, at a guess, was about four minutes.

The doctor rushed me and my Dad to a local hospital where they took CT scans of my brain and tried several responsiveness tests. I was returned to a ward to see if I would regain consciousness, but when it was confirmed that I had suffered a massive Brain Haemorrhage, I was taken then to the Walsgrave Hospital in Coventry where they performed an emergency Craniotomy where they cut a hole in my skull, clipped the bleeding blood vessels with metal clips, removed the blood that had flooded my brain and left me in an induced coma to see if I would recover. I was literally at death's door.

However I woke up several days after the operation in the Intenstive Care unit, unable to comprehend what had happened to me. I couldn't talk or form sentences correctly; the right hand side of my body was almost completely paralysed. The room I was in would rearrange itself every time I blinked. It was as if I was frozen in time while the world around me rushed by. I struggled to recognise visitors at my bedside, one minute recognising them as family but the next they were just voyeuristic strangers. I remember a mirror being thrust in front of me; but I didn't even recognise my reflection. My hair had been shaved off and I had an enormous scar running from behind my left ear towards the top of my head.

My mum tried to explain what had happened to me but I couldn't understand. I'd never even heard of a Brain Haemorrhage before, and had only heard of strokes when they happened to someone on TV.

After a few days in this confused state, I was transferred to my local hospital's children's ward, where I was able to receive visitors; this is where my recovery really picked up. My family and friends made me smile and laugh again just by talking to me. I received intensive physiotherapy to get my strength in my body back and occupational therapy where I had to perform household tasks like making a cup of tea and doing a jigsaw. I was given a wheelchair which I was only able to move slightly at first; but even this small achievement was a massive boost to regaining my independence. My right arm, hand and leg still refused to work most of the time, which was very frustrating as it meant I couldn't play with the Megadrive in the children's ward, my fingers refusing to press the buttons no matter how hard I willed them to.

I was finally allowed to go home a week later with a strict exercise regime and speech and language therapy sessions to regain my communication skills. I couldn't do much for myself anymore, and I had to rely on mum and dad for everything. I hated being so dependant on other people. I had one goal; to get back to school and be with my friends again. Thanks to the physiotherapy sessions, I had managed to regain the ability to stand and walk again which, to me, was the biggest achievement I had made. I was finally able to climb the stairs to my bedroom at home where I was finally able to get some privacy, away from the constant supervision. My speech had returned with the Speech and Language therapy, although I was still struggling to say the right words in the correct order and context. I think that being unable to express myself was the scariest and most frustrating aspect of the brain haemorrhage. It was like being imprisoned in my own mind, and as a hormone-addled teenager striving for independence; it was an excruciatingly difficult period of time.

Three weeks later, I was summoned back to the Walsgrave hospital for an angiogram, where it was revealed that I needed another operation to clip the bleed further, which was a massive blow to me as I was afraid it would undo all the hard work I'd done in the various therapy sessions I had attended. The operation wasn't as long as the first one, and I managed to regain consciousness again with most of my faculties intact. I was walking again after a couple of days of being moved from the ICU to a regular ward. Another angiogram revealed that I needed one more operation to finally clip the bleed, which was carried out a couple of weeks later. I was finally discharged from hospital in late September and allowed to recover at home. By this time, my mobility had returned and I was able to walk unassisted for increasingly longer distances.

I was finally allowed back to school in October 1995, with the strict condition that I had to be kept separate from the other students during busy times in the corridors, in case I was knocked over and banged my head. My treatment once I had returned was a mixture of compassion, indifference, fascination and disbelief. Most were kind to me and patient with my difficulties, but some people (mostly other students but a couple of teachers too) accused me of exaggerating my symptoms to "gain attention" or to get out of doing work which was really hurtful; although as apart from the big scar and speech problems, there appeared to be nothing wrong with me, outwardly at least.

I failed all of my practice GCSE exams spectacularly and was almost moved to the lower ability groups but I refused to leave; the brain haemorrhage giving me a resilience and stubbornness that I didn't possess before. I worked really hard over the remaining few months of the term before the actual GCSE exams in May 1996; where I managed to get my grades back up to pass levels which, considering the situation I was in less 12 months previously was a monumental achievement. I went on to do my BTEC and HND, pass my driving test and now live like everybody else, apart from epilepsy, aphasia and a few memory issues.

I've done several interviews about the stroke, for the Daily Telegraph and the Sun. I'm also a case study in an AS Level Biology Textbook in the Cardiovascular Disease section! Charming eh?

The NHS was absolutely wonderful in looking after me. From the quick diagnosis at the local hospital, to the long and complicated operations and tests, to the aftercare, physiotherapy to get me walking again, speech and language to help me communicate and Occupational Therapy to get me doing day to day tasks. Right down to the vicar in the hospital chapel who used to come and visit me, to the work experience girl who held my hand when I was scared to go into the CT Scanner, to the library staff who saved me audiotapes. A whole army of people dedicated to helping me rebuild my life from scratch. My treatment, including epilepsy medicine for the rest of my life, must have cost thousands.

I will always owe my life to the NHS.
(, Sat 13 Mar 2010, 23:30, 10 replies)
*Raises glass to your triumphant recovery and fearsome scars*
Also, thank you - you may well have indirectly contributed to my biology A-level :)
(, Sat 13 Mar 2010, 23:59, closed)
Oooh I hope so
was it the Salters Nuffield Advanced Biology text book?

I think it's crazy that I'm in a school book - I've probably had CDCs drawn all over my face by bored students!
(, Sun 14 Mar 2010, 0:48, closed)
lol
thought this sounded familiar, one of those things that's really stuck in my mind, don't ever remember seeing a photo though
(, Sun 14 Mar 2010, 2:10, closed)
I saw you
My college had the pilot year of SNAB in my AS year, now I know what you look like! You and the picture of the coolest kitten ever are the only two photos that stick in my mind to this day.

Your story is better on B3ta, but even having been edited by Salters it was still a great read. You, my good man, are a fantastic representation of how people should view life.
(, Mon 15 Mar 2010, 15:34, closed)
haha that's very kind of you :)
I never really thought about people using the text book in schools/colleges until one of my colleagues at work was googling my name for a laugh then found the SNAB book on Amazon. Now I know that several b3tans have taken the course...it's kind of humbling really.
(, Mon 15 Mar 2010, 19:54, closed)
Wow
Good to read dude, glad things are looking up now...
(, Sat 13 Mar 2010, 23:59, closed)
Non clickers will be CUNTED IN THE FUCK
as per usual.

FTW.
(, Sun 14 Mar 2010, 19:32, closed)
Bloody Hell, if you can excuse the term
Wow, well done on the recovery. It is not just a good body that gets you through this shit, it is a damn strong mind.

Clicky for just getting on with it and succeeding.
(, Sun 14 Mar 2010, 19:36, closed)
Keep on fighting
you stuborn fucker. Click
(, Mon 15 Mar 2010, 15:58, closed)
cheers :)
I was going to write about the Double Pneumothorax I had a couple of years later but I think I'll save that for another QOTW...
(, Mon 15 Mar 2010, 19:56, closed)

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