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This is a link post NHS to make data available
What could possibly go wrong!??

Opt out now via the pdf (print, fill in and give to your doctors) or this link www.nhs.uk/your-nhs-data-matters/manage-your-choice/ (I don't think you can opt out children via this way)
'Biggest data grab' in NHS history stuffs GP records in a central store for 'research' – and the time to opt out is now


 (razzle, Fri 14 May 2021, 16:40, , Reply)
This is a normal post If it's anonymised, what's the problem?
"NHS Digital said names and addresses, written notes, images, letters, and documents would not be collected. Nor would coded data that is not needed due to its age and coded data that GPs are not permitted to share by law."

Sounds fairly standard for dealing with sensitive/confidential patient data, at least in my experience (pharmacy/clinical trials). Sure, there's always concern about data being hacked/compromised, but if it can't be used to identify an individual then what's the objection? Health professionals do take confidentiality very seriously.
 (The Porcupine From Purgatory Writtern By the Winners, Fri 14 May 2021, 17:36, , Reply)
This is a normal post The UK government has a storied history of keeping our data completely safe, yeah?

(I helped save b3ta! brb homonecrobatrachophile, Fri 14 May 2021, 18:35, , Reply)
This is a normal post Absolutely, I get those concerns
Key point for me, though, is what data is collected in the first place. If (and I concede it's a big if) it's properly anonymised before the data is collected, I don't see the problem.
 (The Porcupine From Purgatory Writtern By the Winners, Fri 14 May 2021, 18:49, , Reply)
This is a normal post
re: data anonymised - not really, since it really depends on what other databases exist now and in the future that could be used to cross reference the data. eg using the data from Tesco club card dataset(which has your name etc) with a machine Learning algorithm - I suspect the data would be able over a period time, able to identify a lot people. This will only get more detailed with time as more information eg facebook? your browsing habits which are also collected by ISPs and given to many many agencies etc.. etc...

and also allowing US multinational's to analysing the data to then start the bidding process for select GPs. has the UK government ruled NHS from the treaties with the US? no! what better way would there be for them to understand the UK healthcare market
 (razzle, Fri 14 May 2021, 19:44, , Reply)
This is a normal post Cradle to grave data, minus whatever the dear old ladies working part time at the GP surgery understand needs to be removed.
I like the idea of truly anonymous medical data being used constructively, but I have no faith in this or future governments to keep it anonymous, safe and secure.

Centralising government databases never ends well.
 (I helped save b3ta! brb homonecrobatrachophile, Fri 14 May 2021, 19:52, , Reply)
This is a normal post Do you really think opting out would stop data theft/use?
As soon as it is online it will be well worth selling to the US, then apologising afterwards and a public inquiry (after the election).
 (I helped save b3ta! FeralCatMan Unusual disease collector., Fri 14 May 2021, 19:32, , Reply)
This is a normal post It might be worth a lawsuit when you find your data used to promote or deny you services later on.

(I helped save b3ta! brb homonecrobatrachophile, Fri 14 May 2021, 19:57, , Reply)
This is a normal post Lawsuits are usually for people with money*.
They are unlikely to admit that is why they are refusing services, the same way it is difficult to prove discrimination at job interviews.

*although I have beaten the DWP at tribunal.
 (I helped save b3ta! FeralCatMan Unusual disease collector., Fri 14 May 2021, 21:42, , Reply)
This is a normal post
Isn't this data that Amazon and Google already had?
www.wired.co.uk/article/amazon-nhs-data-matt-hancock
 (I helped save b3ta! evil_andy Stick stick stick stick sticky sticky stick stick, Fri 14 May 2021, 19:57, , Reply)
This is a normal post Don't worry, as a GP I always make sure that my patient's data is so poorly coded that it would be worthless if it fell into the wrong hands.

(Agent Pr1ck llǝɯs ǝɥʇ sʇI ˙ǝɔɐld sᴉɥʇ ǝʇɐɥ l, Fri 14 May 2021, 21:25, , Reply)
This is a normal post Hope they don't start that where I am.
One of the reasons I am skeptical of conspiracies is that incompetence makes them unlikely to work.
 (I helped save b3ta! FeralCatMan Unusual disease collector., Sat 15 May 2021, 17:56, , Reply)
This is a normal post Has Rob tried selling B3ta data to researchers?
Not sure he'd get much but it might be another source of revenue.
 (Mehitabel_Itrang, Sat 15 May 2021, 9:05, , Reply)