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This is a link post How to pull off an NHS data grab: do it during a pandemic
For yourself, read the article. www.theguardian.com/commentisfree/2021/jun/04/tories-nhs-data-grab-pandemic
Most importantly, if you care or worry about your (or others) personal UNanonymised medical data being sold to anyone who can target you knowing your public and private challenges.
Time is very short and you might have to print forms out and get them in manually.
 (I helped save b3ta! unclepills, Sat 5 Jun 2021, 10:49, , Reply)
This is a normal post The Inform Commissioners Office website
Is a really useful resource to learn about data protection etc legislation.

www.ico.org.uk

Not to be mixed with with ico.org - which is about coffee.

edit : Information not inform.
 (Damien Hurts just forgot a really good idea, Sat 5 Jun 2021, 11:49, , Reply)
This is a normal post Takes two mins
to opt out (plus a stamp and an envelope) here's how:
medconfidential.org/how-to-opt-out/
 (I helped save b3ta! buffet_the_appetite_slayer ٩(●̮̃•)۶ jacked in to the ICE on, Sat 5 Jun 2021, 13:40, , Reply)
This is a normal post Cheers for that.

(I helped save b3ta! Extinct Jesus Dossier "...I think it counteracts Hitler's magic...", Sat 5 Jun 2021, 14:48, , Reply)
This is a normal post Typical, they want it in writing, unlike your data.

(I helped save b3ta! FeralCatMan Unusual disease collector., Sat 5 Jun 2021, 16:44, , Reply)
This is a normal post So you're against the NHS using anonymised data to improve provision of services to patients?

(Agent Pr1ck llǝɯs ǝɥʇ sʇI ˙ǝɔɐld sᴉɥʇ ǝʇɐɥ l, Sat 5 Jun 2021, 18:31, , Reply)
This is a normal post I'm against NHS Digital making copies of my most personal data for the purposes of selling it to market research companies
If this were all above board then fine. However the government tried to do exactly the same thing seven years ago and were met with a deluge of reasonable concerns which they promised would be addressed. Instead of doing so, and in the wake of years of failures of the current system to ensure medical data is properly handled, the government have attempted to sneak these changes through with no fanfare and no consultation.

Ref: www.theregister.com/2021/05/17/nhs_data_market_access/

p.s. It's not anonymised.
 (I helped save b3ta! Cassius Kray floats like a butterfly, stings like a trout, Sat 5 Jun 2021, 18:58, , Reply)
This is a normal post De-anonymising large datasets is trivial.

(I helped save b3ta! wheresthefish Partly filled with wrong, Sat 5 Jun 2021, 19:47, , Reply)
This is a normal post pseudo - anonymised according to that article and easily
de-anonymised ...

nomynized?
 (I helped save b3ta! simbosan liked your link on, Sun 6 Jun 2021, 1:00, , Reply)
This is a normal post anonymised
doo doooo dododo

 (I helped save b3ta! Extinct Jesus Dossier "...I think it counteracts Hitler's magic...", Sun 6 Jun 2021, 10:28, , Reply)
This is a normal post I see you have diabetes
There is a special on 3 litre bottles of Coke Zero at Tesco home delivery. Click here to order
 (I helped save b3ta! cumquat may will not be commenting further on the allegations, Sun 6 Jun 2021, 2:39, , Reply)
This is a normal post There have been posts on social media with false information about opting out of sharing your data with the NHS.
Here's what you need to know:

There is no 30 September deadline for opting out of sharing your data. You can opt out at any time.
NHS Digital will never sell your data.
There are strict rules about how the NHS can use your data. It's only shared securely and safely.
Shared data helps the NHS. It has been used to find the first treatment for coronavirus and for vaccine research.

www.nhs.uk/your-nhs-data-matters/
 (Agent Pr1ck llǝɯs ǝɥʇ sʇI ˙ǝɔɐld sᴉɥʇ ǝʇɐɥ l, Sat 5 Jun 2021, 18:33, , Reply)
This is a normal post If you'd bothered to read the information on unclepill's link you'd know that this is deliberately misleading
There is a 23rd June deadline for opting out of NHS Digital's data grab. Which they don't mention on the website you've linked to, because they don't want you to know.
 (I helped save b3ta! Cassius Kray floats like a butterfly, stings like a trout, Sat 5 Jun 2021, 19:01, , Reply)
This is a normal post
We all know it'll be outsourced to Lowest Bidder plc, who will leave the data on an unencrypted laptop in a taxi.
 (MC Chicken Sandwich Me gusta ver la pornografía de los milfs., Sat 5 Jun 2021, 21:17, , Reply)
This is a normal post The way that memory media sizes are going it'll be accidentally inhaled

(Mehitabel_Itrang, Sat 5 Jun 2021, 22:58, , Reply)
This is a normal post What a naive position...
Looking to the NHS for verification of information about the NHS doing underhand things!
"We checked, and we are definitely not doing anything underhand! Trust us!"

No.

BTW, to the lefties claiming this is a "Tory driven thing" - it's not one way or the other, they're all at it left and right. Blues are in with one group of businesses, the reds are in with others. The other colours are equally corrupt, they're just ineffectual morons, instead of effective morons.
 (I helped save b3ta! Dave Trouser ; the people's choice - 75% agree, Mon 7 Jun 2021, 14:23, , Reply)
This is a normal post In Scotland we don't have NHS Numbers
we have CHI numbers, and as such, the NHS digital form won't let you opt out.

Which is annoying.
 (I helped save b3ta! gaijintendo Regular Member, Sat 5 Jun 2021, 23:11, , Reply)
This is a normal post This doesn't currently apply to us in Scotland afaik
It's only England's NHS that is having its data harvested here, so no need to opt out of this one. Health is a devolved issue, which is why Westminster are trying to take these powers back - how can they make a profit from us otherwise?
 (I helped save b3ta! VicJameson : fucking internet virgins since, Sun 6 Jun 2021, 12:41, , Reply)
This is a normal post Oh, wondered if that might be the case,
But it's very poorly addressed online.
 (I helped save b3ta! gaijintendo Regular Member, Sun 6 Jun 2021, 12:51, , Reply)
This is a normal post Wales isn't part of it either.

(I helped save b3ta! FeralCatMan Unusual disease collector., Sun 6 Jun 2021, 16:21, , Reply)
This is a normal post Looks like just England

www.theguardian.com/society/2021/jun/06/labour-asks-nhs-and-matt-hancock-to-pause-plans-for-sharing-patient-data
 (MC Chicken Sandwich Me gusta ver la pornografía de los milfs., Sun 6 Jun 2021, 23:03, , Reply)
This is a normal post Can't see a mention of Wales there.

(I helped save b3ta! FeralCatMan Unusual disease collector., Sun 6 Jun 2021, 23:42, , Reply)
This is a normal post Also
Merry Candlemas 🕯️🕯️🕯️🕯️🕯️🕯️🕯️
 (I helped save b3ta! gaijintendo Regular Member, Sun 6 Jun 2021, 12:52, , Reply)
This is a normal post Pretty sure we in the Queen's Land, subsidise your prescriptions mate, along with a load of other stuff.
Most of us can't wait for you to vote for independence and be rid of you. The resulting shitshow will be amazing to watch with a big bowl of popcorn.
MORE BREXIT! Do it now.
 (I helped save b3ta! Dave Trouser ; the people's choice - 75% agree, Mon 7 Jun 2021, 14:27, , Reply)
This is a normal post Darwinian evolution in action
It's fine.
The demographic of dumb conspiracy theorists and other tin-foil-hatters who opt out will be underrepresented in research data, so their rare conditions will receive an inferior prognosis.
 (SockCooker ПТН ПНХ, Sun 6 Jun 2021, 0:50, , Reply)
This is a normal post "I trust Matt Hancock so I am genetically superior"

(benito vaselini no not that one, Sun 6 Jun 2021, 10:38, , Reply)
This is a normal post Public research isn't the problem, trusting IT systems is.
Future sale to commercial interests, insurers etc. then, whoops the data is stolen.
 (I helped save b3ta! FeralCatMan Unusual disease collector., Sun 6 Jun 2021, 16:31, , Reply)
This is a normal post Indeed
If I could be sure they would use the data in a careful and considered way with all the relevant privacy it deserves, then I’d happily assent. However, I’m not convinced they are capable and I’m convinced that they’d sell the dataset to anyone with the requisite beans to pay for it.
 (gearanach #wankwankwank, Sun 6 Jun 2021, 16:55, , Reply)
This is a normal post Allowing your data to be used for research purposes only isn't one of the options available to you
So what are you going to do?
 (I helped save b3ta! Jeffrey44 (User was banned for this post), Mon 7 Jun 2021, 7:19, , Reply)
This is a normal post Well, I'm glad it's all clear now

(I helped save b3ta! unclepills, Tue 8 Jun 2021, 2:29, , Reply)
This is a normal post And your work is done
Stand back light your pipe and admire your handywork
 (I helped save b3ta! spazzcaptain Misses Valin @, Tue 8 Jun 2021, 23:20, , Reply)