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The Doveston asks: Have you ever fought back from a terrible illness? Got out of a job that was going nowhere? Secured a great victory against the odds through dishonesty and cheating? Warm our hearts, B3ta
( , Thu 13 Dec 2012, 13:06)
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I have had crohn's disease for nigh on 7 years now and admittedly it hasn't killed me, but it fucked my life up that much that it might has well have done.
When your 19/20 and your going to drop the kids off at the pool at least 60+ times a day (no joke) and with less than a minutes warning (if lucky), life becomes a little difficult. You cant leave the house for fear of dropping bombs when not over a valid target.
I started to get treated and flew through conventional treatments like steroids and was put onto immunosuppressants which again failed to work. I then was put onto "biologics" which are like hardcore immunosuppressants you have by a drip or self injection. No they did work however I then developed a narrowing of my intestine and the only way to deal with that is surgery.
3 months and 18 days ago, I had a proctocolectomy. For those of you who dont know what it is, some very nice people at the Royal London Hospital surgically removed about a foot and a half of large intestine and my arsehole, yes I am officially a proper barbie/ken bum.
I've been left with a permanent colostomy which to get at 24 years old is a bit of a head fuck but it changed my life overnight. I've gone from not being able to leave the house and get on public transport or go anywhere really to being back to normal and being able to do what I want, when I want. It's fucking amazing, I almost wish I had done it sooner. Shitting in a bag for the rest of my life is a small price to pay in my eyes to get my life back.
Better a bag than a box!
apologies for the lack of funnnys
It was about a foot and a half once out.
(I'm only putting this link up for people that are interested, its not about hits it's there to try and help people understand. lifeisballbagthenyoudie.wordpress.com/ )
( , Tue 18 Dec 2012, 2:20, 80 replies)
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On balance, I decided to edit out my response, on the grounds I have a shred of decency left.
Life limiting conditions aren't fun, and make choices that once seemed disgusting liberating at times.
( , Tue 18 Dec 2012, 3:37, closed)
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"I was beyond shitting myself."
I don't know if that's intentional or not, but it's fucking genius.
( , Tue 18 Dec 2012, 7:48, closed)
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To be brutally honest, I don't think I've read more than the first line or two of many posts on here since about 2005.
( , Tue 18 Dec 2012, 8:02, closed)
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( , Tue 18 Dec 2012, 8:20, closed)
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I've changed colostomy bags and washed stomas. I'm not massively squeamish about them. It's a pretty unfortunate state to end up in though.
( , Tue 18 Dec 2012, 17:46, closed)
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Not amazingly fun, I have however seen someone on a forum ask if their partner can have sex with their stoma. grim
( , Tue 18 Dec 2012, 9:32, closed)
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Fair play to you, sir, for following up on what is, to be honest, a fairly insensitive line of questioning. Frankly, it's an education to us all.
( , Tue 18 Dec 2012, 10:25, closed)
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( , Tue 18 Dec 2012, 17:48, closed)
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I've heard some talk that this board is mean-spirited, spiteful even. The nerve of some people, eh?
( , Tue 18 Dec 2012, 20:10, closed)
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I saw some frightful cunt questioning the parenting skills of one of the other board members recently. Horrible thing to say. Fortunately, the person on the other end of these scurrilous and quite needless accusations wasn't a massive weepy milkmaid carrying twenty gallons of personal misery and self-loathing and took it as a joke. What with it being a joke website.
( , Tue 18 Dec 2012, 21:20, closed)
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If someone accused me of fingering my kids incorrectly, I'd probably get pretty upset.
( , Tue 18 Dec 2012, 21:54, closed)
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Does the bag inflate in an invariably comedic way, requiring a little valve to let out the smell of guff?
( , Tue 18 Dec 2012, 7:44, closed)
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( , Tue 18 Dec 2012, 7:51, closed)
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although I expect that any gas just collects in the bag.
( , Tue 18 Dec 2012, 9:02, closed)
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Ahhhhh luckily there are two small charcoal filters that let the gas out, so goodbye ever smelling my own farts again :( Ohhhh and you have absolutely no control whatsoever as to when you do fart, and yes it is just as loud as it was before. Akward moment in the library the other day.
( , Tue 18 Dec 2012, 9:30, closed)
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Not trying to be rude or anything but you did say they removed your bumhole.
( , Tue 18 Dec 2012, 9:33, closed)
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Really akward when your meeting your girlfriends parents for the first time and it decides to kick off during a lull in the conversation. What a fun time that was.
( , Tue 18 Dec 2012, 9:38, closed)
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do you have to replace the charcoal filter from time to time?
( , Tue 18 Dec 2012, 9:59, closed)
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they're built into the bag, just rip the bag off and slap on a new one once your done with it so anywhere betwee 0 and 3 times a day. They work well wnough unless you get them wet either in the shower or from the contents of your bag.
( , Tue 18 Dec 2012, 13:25, closed)
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I know you can get things you put in your bag to give your shit a hint of roses or whatever but nothing that significantly changes it.
( , Tue 18 Dec 2012, 15:44, closed)
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I had shat in many places, some voluntarily and some not so much. Alas I never shat in a pringles tube, I feel that would have been somewhat of interesting experience alas only one of the large tubes would have sufficed, one of the "snack pack" size ones would have undoubtedly not been up to the task of containing some of the golgothan shits that would occur.
( , Tue 18 Dec 2012, 9:36, closed)
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More of this sort of thing.
( , Tue 18 Dec 2012, 11:06, closed)
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and told us of his daily trials about farting and pooing into a bag.
( , Tue 18 Dec 2012, 11:21, closed)
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It's Alan's nearest and dearest I feel sorry for.
( , Tue 18 Dec 2012, 13:29, closed)
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( , Tue 18 Dec 2012, 12:17, closed)
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I will make sure that I include alt. suggestions for anyone lacking a bumhole.
I will also make sure I appreciate my bumhole more from now on.
( , Tue 18 Dec 2012, 14:22, closed)
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( , Tue 18 Dec 2012, 14:26, closed)
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Merely that it is not attached to him.
( , Tue 18 Dec 2012, 14:31, closed)
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thank you for considering us arseholeless people, please appreciate your bumhole. it may be gone tomorrow.
( , Tue 18 Dec 2012, 15:49, closed)
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He's quite the connoisseur of arseholes, I believe, and so could probably appreciate them on our behalf.
( , Tue 18 Dec 2012, 16:00, closed)
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My dad has a shitbag, thanks to a botched enema administered by his current wife. Tore his guts to shreds. They must have used a firehose and a tank of acid.
He refers to it as his handbag.
( , Wed 19 Dec 2012, 3:26, closed)
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It'll be buried by some self-pitying wobbler telling a dull story and then throwing his toys out of the pram. And a pun. And some bumholes.
We should boycott qftw until they make it more stoma-friendly.
( , Tue 18 Dec 2012, 18:00, closed)
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Some people have to dialiate their stomas (depending on which bit of intestine it is) with things that look like but plugs. there must be a niche market out there for stoma porn surley?
( , Tue 18 Dec 2012, 21:14, closed)
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diagnosed with Crohns when he was 13.
It's a fucking nasty disease. His outlook is pretty grim, as far as I can see.
Every aspect of his life is affected. Career, parenthood, life expectancy, general health - all made slightly uncertain.
Nice to see you're positive about it. Hope you now stay healthy.
( , Tue 18 Dec 2012, 14:40, closed)
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I wouldn't say so. I once worked with a bloke who had enough kids to make his own football team, with subs. He had a colostomy bag as well.
Lazy fucker though. I used to fantasize about chasing him round with a pin.
( , Tue 18 Dec 2012, 16:49, closed)
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be corrected, but I gather there is some genetic element to crohns.
From a sufferers point of view, you'd have to wonder a) would you pass it on, and b) would you live as long as most parents would expect to.
As I say, uncertainty rather than any physical barrier. It wouldn't have any direct effect on his ability to knock his bird up. Colostomy bags notwithstanding.
( , Tue 18 Dec 2012, 17:06, closed)
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Apparently his wife used to enjoy poking the stoma.
Yurgh.
( , Tue 18 Dec 2012, 17:23, closed)
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But generally speaking yes there is a link, but only to immediate family, i.e. your mum and dad. So it would make no difference if your grandparents had it. It had nearly made me question having kids as there is no way i could watch my children go what I have been through. Still lots of research to be done though.
( , Tue 18 Dec 2012, 21:31, closed)
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I wish I could think of something witty to say but have a friend with pretty severe Crohns and looks like he'll need a c bag after maybe 1 more op... so good to hear it's improved things.
( , Tue 18 Dec 2012, 19:58, closed)
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but i promise i wish i had done it fucking years ago and not spent half my life on the cunting toilet. it'll give him his freedom back.
( , Tue 18 Dec 2012, 21:21, closed)
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I bet you've had to give up drinking Guinness too. I know I wouldn't want to go anywhere near my Guinness shits.
( , Tue 18 Dec 2012, 21:00, closed)
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( , Wed 19 Dec 2012, 9:07, closed)
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( , Wed 19 Dec 2012, 15:32, closed)
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( , Wed 19 Dec 2012, 16:42, closed)
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( , Thu 20 Dec 2012, 8:13, closed)
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It fucking sorted me right out, as did humira, my problem was a narrowing of the intestine, i also slowly became tolerant to infliximab as it has a mouse protein in its production, which oyu can become tolerant to. the hunmira non mouse version seems to work a bit longer. but you should try infliximab first.
( , Thu 20 Dec 2012, 2:15, closed)
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I ain't heard of Humira before, but just did a quick little google, I'm gonna ask my docs about it today (coincidently, today is 'nab day for me).
Narrowings are serious pain, I'm fortunate enough for it to be in specific sections for me, I'm on my third op and think I'm between 2 and 3 ft cut out. I honestly can't remember though.
( , Thu 20 Dec 2012, 10:33, closed)
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